| Organisation | The National Cancer Nursing Education Project (EdCaN) and Cancer Australia |
| Comments | This case study recounts the experience of Justin, a 16-year-old male diagnosed with osteosarcoma. This case study aims to facilitate the development of competencies that reflect the role of the Specialist Cancer Nurse (SCN) in delivery of supportive care, including provision of information and education for people affected by osteosarcoma in adolescents and young adults (AYA). The case study contains four sections:
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| Date of development | 2009 |
| Format | Online learning resource containing videos |
| Target audience | Multidisciplinary - Nursing and Allied health |
| Accessibility | Publicly available - no restrictions |
| Cost | Free of charge |
| Country of origin | Australia |
| URL: | http://www.cancerlearning.gov.au/edcan_resources/#/xml/module_3/casestudies/osteosarcoma |
| Organisation | Coventry University |
| Comments | Designed through an international curriculum development group, the course is delivered online, allowing students to work at their own pace. Students are introduced to theory and practice about caring for teenagers and young adults with cancer and theory modules are underpinned by a work based learning module that enables students to reflect on and develop their own practice. Aimed at all of the multidisciplinary team, students are encouraged to work together online to develop specialist knowledge and learn how the various roles combine to offer patient-based care. The course covers theories and concepts relating to caring for cancer sufferers in different age groups including transition, normal adolescence and emerging adulthood. Options around palliative care, acute care and long term follow-up are available for students to mould the course to meet their individual practice needs. The options consist of one compulsory introductory module, one compulsory work based learning module and a choice of module, either related to palliative care or to acute and longer-term care. For further information, please download the eBrochure in PDF: Cancer Care for Teenagers and Young Adults courses |
| Date of development | 2009 |
| Format | Online learning course |
| Target audience | Multidisciplinary |
| Accessibility | Graduates who are registered health or social care practitioners working in paediatric or adult cancer care services |
| Cost | Enrolment fees apply, contact part-time.uni@coventry.ac.uk for details |
| Country of origin | UK |
| URL: | http://wwwm.coventry.ac.uk/ptshortcpd/pgpt/Pages/pgpt.aspx?itemID=15 |
Organisation: |
Cancer Australia & CanTeen |
Comments: |
Cancer Australia is collaborating with CanTeen to develop a National Service Delivery Framework for young Australians affected by cancer. The draft Adolescent and Young Adults Cancers National Service Delivery Framework concentrates on the specific service delivery needs of adolescents and young adults affected by cancer, to improve outcomes for this group throughout their cancer journey and as they move on with their life. |
Format: |
Website - information |
Target audience: |
Multidisciplinary |
Accessibility: |
Publicly available - no restrictions |
Cost: |
Free of charge |
Country of Origin: |
Australia |
URL: |
Organisation: |
Clinical Oncological Society of Australia (COSA) |
Comments: |
A report of the 2007 Adolescent and Young Adult (AYA) Cancer Forum held with a broad representation of stakeholders and practitioners to develop a shared understanding of the issues and challenges in the treatment and care of adolescents and young adults with cancer, and to agree on the key elements of appropriate models of care. |
Format: |
Web-based PDF |
Target audience: |
Multidisciplinary |
Accessibility: |
Publicly available - no restrictions |
Cost: |
Free of charge |
Country of Origin: |
Australia |
URL: |
http://www.cosa.org.au/File/Projects/AYA%20Cancer%20Forum%20Report%20(Final).pdf |
Organisation: |
Peter Mac Cancer Centre |
Comments: |
onTrac@PeterMac is Australia's leading multidisciplinary health care team that offers specialised, age appropriate care to Adolescent and Young Adult (AYA) cancer patients treated within adult hospitals. The team includes a medical & paediatric oncologist, clinical nurse consultant, psychiatrist, psychologist, social worker, palliative care CNS, education advisor, music therapist, education & training officer and research officer. The service provides:
The Health Professionals section of the web site has been designed specifically to assist health professionals who work with or have an interest in adolescent and young adult cancer care. The information that can be found in this website has come from the knowledge and experience gained from healthcare professionals working in the field. |
Format: |
Website - information |
Target audience: |
Health professionals, multidisciplinary, consumers |
Accessibility: |
Publicly available - no restrictions |
Cost: |
Free of charge |
Country of Origin: |
Australia |
URL: |
Organisation: |
Cancer Institute NSW |
Comments: |
This report is the first step for NSW in understanding the issues surrounding the care needs of AYA with cancer. It provides an overview of the current treatment pathways and models of care for AYA with cancer, their access to and participation in clinical trials, palliative and psychosocial support needs and the psychosocial and late-effects for this unique group of cancer patients in NSW and allows further understanding about specific issues surrounding adolescent and young adult (AYA) cancer patients. |
Format: |
Web-based PDF |
Target audience: |
All health professionals |
Accessibility: |
Publicly available - no restrictions |
Cost: |
Free of charge |
Country of Origin: |
Australia |
URL: |
Organisation: |
Clinical Oncological Society & The Cancer Council Australia |
Comments: |
An edition of Cancer Forum Journal with a focus on Adolescent and Young Adult Cancers and associated issues. |
Format: |
Articles available on website |
Target audience: |
Multidisciplinary |
Accessibility: |
Publicly available - no restrictions |
Cost: |
Free of charge |
Country of Origin: |
Australia |
URL: |
Organisation: |
Seminars in Oncology Journal |
Comments: |
Seminars in Oncology provides current, authoritative, and practical reviews of developments in the diagnosis and management of patients with cancer. Each issue examines a single topic of clinical importance. This edition focuses on Cancer in Adolescents and Young Adults. Among 20- to 39-year-olds, cancer causes more deaths than any other disease except depression that culminates in suicide. More females in the age group die of cancer than of the next three causes combined. Yet, substantially less attention has been given to young adults than to children and older adults, and the relative improvement in the survival rate in young adults has not kept pace with that achieved in younger or older patients. Additionally, there is evidence that a substantial proportion of the cancers in young adults have a different biology, and probably etiology/pathogenesis, than that of what appears to be the same cancer in younger or older persons. The challenges of early detection, diagnosis, treatment, and follow-up are therefore likely to be distinctly different than in persons of a different age. |
Format: |
Web based PDF |
Target audience: |
Multidisciplinary |
Accessibility: |
Abstracts are publicly available, articles available to subscribers |
Cost: |
Payment required - access to abstracts is complimentary; access to full-text is limited to subscribers – subscribe: http://www.seminoncol.org/pricing |
Country of Origin: |
US |
URL: |
http://www.seminoncol.org/issues/contents?issue_key=S0093-7754(09)X0002-3 |
Organisation: |
NSW Oncology Group: Child and Adolescent |
Comments: |
NSW Oncology Child and Adolescent Group was established by the Cancer Institute NSW in August 2005, to bring together the state's lead cancer clinicians, patients and planners to:
|
Format: |
Articles available on website |
Target audience: |
Multidisciplinary |
Accessibility: |
Publicly available - no restrictions |
Cost: |
Free of charge |
Country of Origin: |
Australia |
URL: |
http://www.cancerinstitute.org.au/cancer_inst/nswog/groups/child.html |
Organisation: |
Springer |
Comments: |
This textbook, edited by Archie W. Bleyer and Ronald Duncan Barr, is a comprehensive book devoted exclusively to cancer in adolescents and young adults. An n overview of cancer in this age group, specifically from age 15 to 29 inclusive, including epidemiology and the general differences in prevention, early detection, diagnosis and treatment is presented. The 15 most common categories of cancers in the age group regarding their epidemiologic, risk factors/etiology, presenting symptoms and signs, diagnostic workup, treatment, survival outcomes, and adverse effects are each covered in separate chapters. The emphasis is on how the cancer in the age group differs in epidemiology, biology, clinical management and outcome from the ‘same’ cancer in younger and older patients. |
Format: |
Textbook |
Target audience: |
Multidisciplinary |
Accessibility: |
Cost involved (retail) |
Cost: |
See Springer website for ordering details. |
Country of Origin: |
USA |
URL: |
http://www.amazon.com/Cancer-Adolescents-Adults-Pediatric-Oncology/dp/3540408428 |
Organisation: |
Blackwell Publishing |
Comments: |
This book, based on an international conference hosted by the Teenage Cancer Trust, addresses the issues surrounding care of the adolescent with cancer more completely than ever before. Some chapters provide practical information from leading specialists on managing and treating the specific tumours affecting this group whilst others present discussions by psychologists, nurses and other healthcare professionals on the many lifestyle issues that confront teenagers with cancer. Finally and maybe, most importantly, contributions from patients and carers give an insight into what it feels like to have the disease while growing into adulthood.With its insight into the problems, and guidance on best practice, this book will be welcomed by all professionals and carers who work with young people with cancer. |
Format: |
Text book |
Target audience: |
Multidisciplinary |
Accessibility: |
Publicly available - no restrictions |
Cost: |
Payment required - retail |
Country of Origin: |
UK |
URL: |
http://au.wiley.com/WileyCDA/WileyTitle/productCd-0727918109.html |