• Evidence and Treatments
  • Fundamentals of Oncology
  • Coordination of Care
  • Multidisciplinary Care
  • Supportive Care
  • Key Resources

  • Adolescent & Young Adult
  • CALD
  • Clinical Practice Improvement
  • Geriatric
  • Indigenous
  • Paediatric
  • Palliative Care
  • Primary Care
  • Work/Life Balance

paediatric title

Resources

Organisation:The National Cancer Nursing Education Project (EdCaN) and Cancer Australia
Comments:

This case study recounts the experience of Ellie, a 4-year-old female diagnosed with ALL. This case study aims to facilitate the development of competencies that reflect the role of the Specialist Cancer Nurse (SCN) in managing disease and treatment related care for the child and family affected by ALL across the cancer journey.

The case study contains three sections:

  • Find the condition early
  • Have the best treatment and support during active treatment
  • Have the best treatment and support between and after active treatment.
Format:Online learning resource containing videos
Target audience: Multidisciplinary - Nursing and Allied health
Accessibility:Publicly available - no restrictions
Cost:Free of charge
Country of Origin:Australia
URL:http://www.cancerlearning.gov.au/edcan_resources/#/xml/module_3/casestudies/paediatric_cancer
Updated date:2009
Organisation:National Cancer Institute (NCI)
Comments:

Database of over 50 evidence-based summaries for health professionals providing comprehensive, peer-reviewed, evidence-based information about paediatric treatment in cancer.

Developed by the PDQ Paediatric Treatment Board of the National Cancer Institute, these summaries are regularly reviewed and updated online.

Format:Website - information
Target audience: Multidisciplinary
Accessibility:Publicly available - no restrictions
Cost:
Country of Origin:USA
URL:http://www.cancer.gov/cancerinfo/pdq/pediatrictreatment
Updated date:2010
Organisation:Children's Cancer and Leukaemia Group (CCLG)/British Journal of Neurosurgery
Comments:

Children's Cancer and Leukaemia Group (CCLG) developed The guidelines for the management of intracranial meningioma in children and young people because due to the rarity of the disease in children, paediatric meningiomas are often treated according to the adult practice which may lead to inappropriate treatment considerations since paediatric meningiomas exhibit peculiarities that distinguish them from their adult counterpart.

These guidelines have been developed following a comprehensive appraisal of the literature; though the paediatric literature is based on small, single institution retrospective studies over extensive time periods during which the imaging facilities, pathological criteria and surgical advances have led to shifts in definitions of disease making comparison of results difficult to interpret.

The guidelines recommend that primary treatment is surgical resection. Careful pathological review and multidisciplinary discussions should be undertaken before considering postoperative treatment, such as radiotherapy for histologically anaplastic or clinically aggressive, relapsing meningioma. Striking the balance between late toxicities of adjuvant radiotherapy on the growing brain versus the risk of repeated recurrences necessitating surgical interventions in young patients is of importance and will require a clinical decision making process in the paediatric neuro-oncological/neurosurgical MDT tailored to each patient‘s age and clinical setting.

Format:Web-based PDF, journal article
Target audience: Multidisciplinary
Accessibility:Publicly available - no restrictions
Cost:Payment required
Country of Origin:UK
URL:http://www.informaworld.com/smpp/1110760418-54414063/content~content=a789979370~db=all~jumptype=rss
Updated date:2008
Organisation:The Cancer Council Australian and Australian Cancer Network
Comments:

Guidelines regarding childhood lymphoma are included in Chapter 15 iof the Clinical practice guidelines for the diagnosis and management of lymphoma.

Format:Web-based PDF
Target audience: Multidisciplinary
Accessibility:Publicly available - no restrictions
Cost:Free of charge
Country of Origin:Australia
URL:http://www.cancer.org.au//File/HealthProfessionals/Clinical%20Guidelines/LymphomaguidelinesCh15.pdf
Updated date:2005
Organisation:National Institute for Clinical Excellence (NICE)
Comments:

The purpose of this UK-based guidance is to provide recommendations on service provision for children and young people with malignant disease, based on the best available evidence. It is primarily for commissioners of services, but has equal relevance for service providers.

Format:Web-based PDF
Target audience: Health service administration
Accessibility:Publicly available - no restrictions
Cost:Free of charge
Country of Origin:UK
URL:http://www.nice.org.uk/nicemedia/pdf/C&YPManual.pdf
Updated date:2005
Organisation:The Children‘s Oncology Group
Comments:

The purpose of these guidelines is to provide recommendations for screening and management of late effects that may potentially arise as a result of therapeutic exposures used during treatment for pediatric malignancies. Can download whole file as PDF (large file) or individual chapters

Format:Web-based PDF
Target audience: Multidisciplinary
Accessibility:Publicly available - no restrictions
Cost:Free of charge
Country of Origin:USA
URL:http://www.survivorshipguidelines.org/pdf/LTFUGuidelines.pdf
Updated date:2008
Organisation:St Jude Children's Research Hospital
Comments:

Detailed and up-to-date information including the definition, clinical features, treatment strategies and current research of these paediatric cancers.

Format:Website - information
Target audience: All medical practitioners
Accessibility:Publicly available - no restrictions
Cost:Free of charge
Country of Origin:USA
URL:http://www.stjude.org/stjude/v/index.jsp?vgnextoid=bc4fbfe82e118010VgnVCM1000000e2015acRCRD
Updated date:2008
Organisation:Therapeutic Guidelines
Comments:

These therapeutic guidelines for prescribers include a section on paediatric principles and practice. Available for order in hard copy or in electronic version.

Format:Printed resource
Target audience: Multidisciplinary
Accessibility:Publicly available - no restrictions
Cost:Payment required
Country of Origin:Australia
URL:http://www.tg.org.au/?sectionid=47#mozTocId153307
Updated date:2005
Organisation:John Hopkins University Press
Comments:

Edited textbook with chapters addressing aspects of care of children with cancer. Features a new chapter on recognition, prevention and remediation of burnout in pediatric oncology staff members, while throughout the book chapters have been revised and updated to reflect the impact of new antibiotic agents, new antimetics, and new approaches to pain management.

Format:Text book
Target audience: Multidisciplinary
Accessibility:Publicly available - no restrictions
Cost:Payment required
Country of Origin:USA
URL:http://books.google.com.au/books?id=vkCidRfMRKYC
Updated date:2004
Organisation:The Leukemia and Lymphoma Society
Comments:

This program, designed for healthcare professionals, educators, and school professionals, features a diverse group of presenters touching on key topics such as surveillance of late effects as well as psychosocial issues of the cancer survivor and their family, especially siblings, and also strategies for meeting the needs of pediatric cancer survivors and their families.

Included within the presentations are slides and video excerpts from A Lion in the House which offers a unique perspective on the overall impact of childhood cancer.

Format:Video presentation
Target audience: Health professionals, consumers
Accessibility:Publicly available, free registration is required
Cost:Free of charge
Country of Origin:USA
URL:http://www.cancereducation.com/cancersyspagesnb/a/lls/llssj0901/index.cfm?rid=127
Updated date:2009
Organisation:Western Schools Nursing Continuing Education
Comments:

Western Schools is a well recognized, nationally accredited (US) provider of online continuing education for nurses, social workers and counsellors.

This course identifies the differences between adult and pediatric chronic illness and palliative care, and provides information and skills that will enable healthcare providers to approach pediatric palliative care with confidence.

Course objectives include:

  • Discuss goals and appropriate interventions for chronically ill children and their families, in relation to pediatric palliative care.
  • Identify pain control options.
  • Describe methods of communicating about death with the dying patient.
Format:Training resource (modular)
Target audience: Allied Health - Nursing
Accessibility:Free - registration required
Cost:Payment required
Country of Origin:USA
URL:http://www.westernschools.com/Courses/CourseDetail.aspx?courseID=1039&pid=40&categoryID=-1&categoryName=&hoursID=-1&hoursName=&formatID=-1&formatName=&did=3&sort=&dir=Ascending
Updated date:2010
Organisation:St Jude Children's Research Hospital
Comments:

Cure4Kids is a web-based project sponsored by St. Jude Children‘s Research Hospital for the purpose of helping countries with limited resources improve the survival rates of children through free access to online education about catastrophic childhood illnesses, access to consultation and mentoring along with technology and training for management of patient information.

Content is presented in the form of online seminars and conferences with audio narration, electronic full-text books and journals, and online self-paced courses. Cure4Kids contains over 1000 of seminars, courses, and conferences and all material can be easily used and downloaded for reference and educational purposes.

Cure4Kids also has launched Oncopedia, a section of educational clinical cases and reference chapters on childhood cancer treaments. Oncopedia is a freely accessible interactive educational resource on the site designed for pediatric hematologists/oncologists, physicians, and other healthcare professionals who provide care to children with cancer worldwide. Oncopedia‘s content is compiled using online submissions from Cure4Kids users. The content includes complex hematology/oncology cases and images with specific questions about patient management, controversial topics, and interesting presenting features, including illustrations of patient‘s clinical characteristics and imaging and pathology findings.

An international editorial board reviews all the contributions.

Format:Website
Target audience: Multidisciplinary Paediatrics
Accessibility:Publicly available
Cost:Free of charge
Country of Origin:USA
URL:https://www.cure4kids.org/ums/home/
Updated date:2010
Organisation:Camp Quality
Comments:

The McDonald's Camp Quality puppet performance has been created to help inform and educate children about what it's like to live with cancer. It helps kids learn how to be more supportive and understanding of a classmate, friend or family member living with cancer.

The style of the show facilitates discussion and encourages children to ask questions after the show. Whether it is a child living with cancer who discusses how they feel about being at school, or a child who needs reassurance about the facts of cancer, the safe and secure environment created helps children discuss their concerns and emotions.

Format:Workshop (one off)
Target audience: Consumers
Accessibility:Publicly available - no restrictions
Cost:Free of charge
Country of Origin:Australia
URL:http://www.campquality.org.au/public/our-programs/education.aspx
Updated date:2010
Organisation:Australian and New Zealand Children’s Haematology/Oncology Group (ANZCHOG)/COSA
Comments:

The Australian and New Zealand Children‘s Haematology/Oncology Group (ANZCHOG, formerly Australian & New Zealand Children‘s Cancer Study Group) functions as the Paediatric Group of COSA. The central aim of the Group is to ensure the best available therapy for all children with malignancies and haematological disorders.

The Group is involved in clinical trials, national and international, clinical and laboratory based research and holds workshops, seminars and an annual scientific meeting.

Format:Website - information only
Target audience: Paediatricians
Accessibility:Professional organisations/organisation members only
Cost:Free of charge
Country of Origin:Australia
URL:http://www.anzchog.org/
Updated date:2010
Organisation:Humana Press
Comments:

A panel of prominent clinician-scientists comprehensively reviews the latest developments in paediatric pain management, with special emphasis on the setting in which pain is detected and managed.

Format:Text book
Target audience: Multidisciplinary
Accessibility:Publicly available - no restrictions
Cost:Payment required
Country of Origin:USA
URL:http://books.google.com.au/books?id=bD8XZAfygJEC
Updated date:2006
Organisation:Oxford University Press
Comments:

Written for health professionals in psychosocial and supportive roles as they help children and their families through the treatment, recovery, and grieving processes associated with childhood cancer.

Format:Text book
Target audience: Multidisciplinary
Accessibility:Publicly available - no restrictions
Cost:Payment required
Country of Origin:UK
URL:http://books.google.com.au/books?id=DFnsBq_A96AC
Updated date:2006
Organisation:American Psychosocial Oncology Society (APOS)
Comments:

This quick reference handbook, "Quick Reference for Pediatric Oncology Clinicians: The Psychiatric and Psychological Dimensions of Pediatric Cancer Symptom Management" contains information that pediatric oncology clinicians should have to address the psychosocial needs of their patients and patients' families by defining the psychiatric, psychological, social and spiritual issues related to pediatric cancer survivorship.

Format:Booklet
Target audience: Multidisciplinary
Accessibility:Publicly available - no restrictions
Cost:
Country of Origin:USA
URL:http://www.apos-society.org/professionals/tools-resources/handbook/pediatric/pediatrichandbook.aspx
Updated date:2004